Its Wednesday morning October 13, 2010. I got woke up early, like 4am. The mask is so uncomfortable and my mouth is so dry. Brian took the mask off, just like other mornings. I'm beginning to think the smaller size is to blame.
Well, enough of that, Brian's home today to take me to my quarterly visit to the U OF U, a clinic by the John Huntsman cancer center.
Here they weigh you, take pulse, blood pressure, all that stuff. Then you are assigned a room so up to 9 different professions can visit you. A new lady, Anna from MDA is first. So sweet and so willing to help; and she loves my blog! Then Jennifer, the occupational therapist comes in. She helps us with our shower chair woes, and she reads a story in my blog and she likes it! Then we get Kari, the nutritionist. No problems there, wait, how much protein per day? The discussion ends with me promising that I would make a food journal for a few days so I can email it to her. By the way, she reads the same story in my blog. Then we get Kathy, the social worker, very easy going and always listens. She reads yet another story on my blog, this one's about my love for Prozac! She so understands. Next is Kristy, our very smart pharmacist. What's this, you drug your wife so you can sleep? Joking aside she says try Melatonin, it helps you both sleep and could help your dry mouth problems. [sleep aids tend to do this]
Long story, not done yet, we have a small break. Brian says hi to some other patients we have gotten to know for a while. By this time its after 4pm and have not seen the doctor, but we get a resident that checks my very weak limbs and asks a lot of questions. Last we see Dr. Bromberg; he brings in 3 more med students and asks if they can poke and prod. I tell him I'm too tired and then I ask if my swallowing was going to stop working any time soon. Then I ask a question about dying naturally; he answered both questions in his kind gentle way how not to worry. The rest is a blur because I was crying by then so we finished up and Brian took me home. The crying started again Thursday and poor Brian thinking it was his fault finally understood that I was still tired. You can only guess what Brian drugged me with that night. It was so welcomed! I slept late and feel great!
Sunday, October 17, 2010
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